Alexandra is doing well but we had some scary moments last weekend. After she was taken off the Aminohphylline she started having an increase in heart rate drops. That can be a normal response; her body trying to adjust, but the drops were severe and some of them lasted longer than I was comfortable with and she needed a lot more stimulation than she had needed previously. It was really worrying us but the doctor said he wasn't concerned. They gave her a few more days to adjust and the bradys decreased but didn't stop.
The doctor recommended putting her back on the medicine so she could go home sooner. I'm all for her going back on the meds because when she was on them she would brady but it would come right back up with no stimulation. While she was off the meds she had an episode where her heart rate was zero. ZERO. I'm sure my life expectancy has been significantly reduced and if nothing else I have sprouted some new grey hairs. By the time this is all over I would not be surprised if I'm entirely grey.
They restarted the meds yesterday. She was going to get to go home Saturday but she had a brady yesterday so now they are saying Tuesday. Whenever she has gone 5 days without a brady they will let her go home. If she has a brady the 5 days start over again. They are going to send her home on the medicine and also with a monitor. Monday night we're going to spend the night at the hospital in a private room so we still have the nurses there if we have questions before we go home.
Unfortunatly we aren't going to be able to let anyone come visit her for a while. The doctor has said it's best if she doesn't have visitors especially since it's flu season. She's also not allowed to go anywhere. Poor Alex is grounded and she hasn't even done anything.
So we're not sure when we get to come home but it will be soon. Without the Aminophylline it could have been weeks or even a month but on the meds it will probably be Tuesday or at least sometime next week. It will sure be nice to be home.
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